Well, I had my appointment with the high risk ob/gyn today for more ultrasounds. I thought they were going to do a 3d ultrasound but it was just a regular ultrasound. I was hoping that the first scan would be only a scare...unfortunately that is not the case. The doctor said that there is definite hydrocephalus (sp?), meaning that there is water building up on the baby's brain due to a blockage preventing draining. Also measurement for the brain ventricles was 12 mm (8 is average, over 10 is considered problematic). The doctor said that the risks of miscarriage or premature delivery could be high. He said that if the fluid continues to build up that I would probably need to deliver by cesarean section at a hospital in Omaha where they could do emergency surgery shortly following birth to put in a drainage shunt into the baby's skull to drain fluid. He said that the risks of infection and miscarriage from fetal surgery outweigh any prognosis for improvement and there is not much that can be done to correct the problem until the baby is born. It is too early to know the extent of damage we are looking at. If the problem corrects itself the damage already done could be minimal. If the fluid build up gets worse or if the brain doesn't grow into the space there could be serious mental and physical defects and the child may not have a good prognosis on survival. When the doctor asked about what we wanted to do and asked if we were considering termination I just broke down sobbing. I said I don't want to do that. He said he was glad to hear that, but he was legally required to mention it as an option. The doctor did an amniocentecis to test for genetic abnormalities, but we won't know the results for another 7-10 days. (it wasn't as bad as I thought it might be but having a big needle through your abdomen/uterus is not fun! Then I had to have a shot in the rear because I am Rh negative!) The doctor wants me to come in for ultrasounds every two weeks to monitor the pregnancy. I feel so helpless not able to do anything to help my son! It was one of the hardest phone calls I have ever had to make to call my parents and let them know that their little grandson is facing some pretty tough obstacles. I love my son and want everything to be OK. I'm pretty much a nervous wreckI don't know how many of you out there believe in God, but I would appreciate all the prayers for my son as possible. Also if anyone has gone through a similar experience please let me know. Peace.
Kate